Prayers for Baby Jason...

[AzuAngel]

Today I received a call from the hosptial telling me that my son had tested positive for one of the diseases in the newborn screening test, but that they wanted to do more tests to make sure and other stuff.. I don't really understand what they told me because I got a sad, but tomorrow I have to go to a childrens hospital about an hour and a half from where I live so that they can take some blood and urine samples. I ask for your prayers that my son is alright..

[Cpogie]

Oh dear, hopefully the tests were wrong, which happens many times. Prayers for baby Jason, you and your DH for everything to be just fine.
Hopefully this is all a mistake. Hugs.

[bunny]

I'm sorry Your head must be spinning right now. I hope the test was wrong. either way you will be surprised how strong you can be. prayers are going out for you your son and the rest of your family.

[danajc83]

I will be praying for you and your son!

[we3kings]

I have said a prayer for you and your son and family. Try to have faith it will turn out alright.

[Jess0587]

:( Just said a prayer for your son and family. Keep positive thoughts.

[utkd29]

Prayers for you and your baby boy. Hope all turns out well for the both of you. I am sorry to hear this. :(

[AzuAngel]

Thank you everyone! You have no idea how much I appreciate it...

Well right now I am off to the hospital! and like you guys said I hope the tests were wrong...

[Jess0587]

Thank you everyone! You have no idea how much I appreciate it...

Well right now I am off to the hospital! and like you guys said I hope the tests were wrong...

Good luck! and Be Careful!!!

[mkrebecca]

I will be praying for you and your family that all will trun out wonderful for you guys!!

[Cindy]

Prayers for you and your sweet baby boy!

[wicked1]

Baby and family are in my prayers.

[NancyBJ]

Prayers are on the way for Baby Jason and both of his wonderful parents...try to be as calm as you possibly can- this happened to my Godaughter- Mallie, she was not able to drink breast milk (allergic to milk- if she continued to drink it she would have been brain damaged due to the proteins in it.) Her mother, Mary Ellen, was horrified since she was breast feeding her but no brain damage occured- it would have if she continued. So she switched to a special formula and she is a beautiful 7 year old now! This is why they do the testing. Sometimes the can be wrong with the dx. but if they are right they can save many lives by doing something as simple as switching to a special formula.

Continous postive thoughts are on the way!

{{{{{{{{Hugs}}}}}}}}}
Nancy :)

[momsangel]

Prayers for you and that special little man!

[AzuAngel]

Thank you everyone!

I have been trying to be positive....

The results for the blood and urine tests will be ready in 2 weeks so until then my baby has to take some medicine to help him out. The doctors said that my baby might have Glutaric Acidemia type-1.... but that also like some of you said that the results could come out negative.


Thank you all for your prayers once again!!!! :)

[Motherofthree]

Congrats Lidia on your new baby boy and I'm praying that the results come back negative!! ((HUGS))

[momsangel]

Sorry to hear the news,Dear. I read about the condition:( ,I pray it is not positive....Hugs to you both right now..........

[AzuAngel]

thank you everyone once again for your prayers...!!!

well I still haven't gotten the results.. the dr. is on vacations..
:(

I hate this waiting so much!!!!!!!!!!!

[Cpogie]

thank you everyone once again for your prayers...!!!

well I still haven't gotten the results.. the dr. is on vacations..
:(

I hate this waiting so much!!!!!!!!!!!

They don't care how much stress you might be having because of this, darn doctors! no bed side manner at all.

How is the baby doing?

[AzuAngel]

Hi Carol,
The baby has grown so much already... He is lifting his head already, has gained over a pound and has grown about 2 inches.
I hate giving my baby a medicine they prescribed the baby for the disease they think he has.. It makes him have tummy aches and vomit at times.. I hate to see him like that... :( ... but other than that he is just a bundle of joy! :D

[AzuAngel]

2491

THIS IS WHAT MY SON THINKS ABOUT THE MEDICINE lol..:p

[Cpogie]

OMG, you have a comedian in the works, that picture is so adorable!! Yes, he is telling you to take that medicine and stick it. lol Thanks for posting his picture.

[twowhit]

aaawww.... he's SO cute!! hope you get the results soon & he can stop taking that yukky medicine!

[momsangel]

That is adorable, he is such a cutie:D

[utkd29]

He is such a doll. Congrats on your beautiful baby boy!!:)

[SSIAnkie]

You're baby is gorgeous. I am so sorry I didn't see you're thread earlier. Praying for your precious baby and your family! Hopefully that Dr. will be back soon!

[AzuAngel]

thank you everyone for your prayers...

Well I called the hospital today and they said they don't have the results back yet... :( they only had the results for the bilirubin...
they should have them by next week...
;)

[NancyBJ]

He is beautiful! Still praying for you, Jason, Dh and your whole family as you wait...

Positive thought, positive thoughts!

{{{{{{{{{Hugs}}}}}}}}}}}
Nancy :)

[Cpogie]

Any news yet? I hope all is well.

[Jess0587]

2491

THIS IS WHAT MY SON THINKS ABOUT THE MEDICINE lol..:p

Aww!!! I can't believe I missed this..... He is SO cute!!

[LadyPyro]

What a cutie! And what an editorial statement he's giving! Prayers, positive thoughts, and virtual hugs to you all!
Beth

[AzuAngel]

still no news:rolleyes:

and they said in 2 weeks they would have the results! I guess they forgot to say ONE MONTH and 2 weeks???:confused:

[mckenzie]

keeping you in our prayers hopefully you will hear some news very soon

[utkd29]

still keeping you guys in my prayers. Hope you get some good news soon.

[momsangel]

still no news:rolleyes:

and they said in 2 weeks they would have the results! I guess they forgot to say ONE MONTH and 2 weeks???:confused:


Hoping you get good news soon....Still praying for you guys.

[Cpogie]

still no news:rolleyes:

and they said in 2 weeks they would have the results! I guess they forgot to say ONE MONTH and 2 weeks???:confused:

That is not right, so unacceptable to keep you in limbo like this. I would of had a few choice words for them.....hopefully everything is just fine. How is Jason doing?

[AzuAngel]

Jason is doing fine. He has gained almost 2 lbs. already and now weighs 8lbs. 12 oz. :D

I am going to call the hospital again right now and see what they say...

[Cpogie]

Jason is doing fine. He has gained almost 2 lbs. already and now weighs 8lbs. 12 oz. :D

I am going to call the hospital again right now and see what they say...

Oh thats good, I bet he is just a joy. I sure miss my kids being that age.
Hope the hospital has some news for you.

[bunny]

2491

THIS IS WHAT MY SON THINKS ABOUT THE MEDICINE lol..:p

Absolutely beautiful baby !! I hope all goes well for you all.

[AzuAngel]

I got a call from the hospital finally!!! There are good news and bad news! The good one is that in the urine sample everything was normal! So HE DOESN'T HAVE GLUTERIC ACEDEMIA TYPE 1!!!!!! YAY!!!!!!!!!!!!!!!!!!

The bad news is that the blood tests still came out like they did in the newborn screening. There is something elevated and they want to do some more tests to see what my son has. If he does have something it won't be as severe as the GA-1 which the doctors had feared he had....
I have to take my son to the doctor monday to have some lab work done.

So the waiting continues to find out what my son has.........

I WANT TO THANK EVERYONE FOR YOUR PRAYERS!!!! :)

[Cpogie]

I got a call from the hospital finally!!! There are good news and bad news! The good one is that in the urine sample everything was normal! So HE DOESN'T HAVE GLUTERIC ACEDEMIA TYPE 1!!!!!! YAY!!!!!!!!!!!!!!!!!!

The bad news is that the blood tests still came out like they did in the newborn screening. There is something elevated and they want to do some more tests to see what my son has. If he does have something it won't be as severe as the GA-1 which the doctors had feared he had....
I have to take my son to the doctor monday to have some lab work done.

So the waiting continues to find out what my son has.........

I WANT TO THANK EVERYONE FOR YOUR PRAYERS!!!! :)

Thats great news!! We will continue the prayers for Jason.

[utkd29]

I got a call from the hospital finally!!! There are good news and bad news! The good one is that in the urine sample everything was normal! So HE DOESN'T HAVE GLUTERIC ACEDEMIA TYPE 1!!!!!! YAY!!!!!!!!!!!!!!!!!!

The bad news is that the blood tests still came out like they did in the newborn screening. There is something elevated and they want to do some more tests to see what my son has. If he does have something it won't be as severe as the GA-1 which the doctors had feared he had....
I have to take my son to the doctor monday to have some lab work done.

So the waiting continues to find out what my son has.........

I WANT TO THANK EVERYONE FOR YOUR PRAYERS!!!! :)

I am glad to hear the good news. Hopefully everything will turn out fine. Still praying for more good news.

[SSIAnkie]

I will say prayers for more good news! Wishing you and you're family the best!

[twowhit]

I'm so happy for you about the good news! Keeping your sweet boy in my prayers... & I sure hope you don't have to wait so long for the next lab results.

[Motherofthree]

Lidia!! Your son is so cute!! Praying that they figure out what's going on with your precious son and that everything will be okay! Hugs!

[momsangel]

Will continue praying for you all

[AzuAngel]

Thank you everyone for your prayers!


I am worried once again about the Glutaric Acidemia type 1. When I called last week to see if they had the tests results it was a nurse who told them to me because the doctor was on vacations. She said that the urine samples were normal so that the baby didn't have GA1.
On monday when I talked to the doctor he said that the urine samples came back normal but in the blood tests the levels of gluteric something (long words I don't remember) were more than twice the normal range. Because of that he said that he wants to do another test on the baby because he wants to completely rule out GA1. He would rather be safe than sorry just like us. The only thing to do to be sure now is a dna analysis. This is very expensive so we have to get pre approved by the insurance first before we can do this test. If the insurance says yes then we will get a blood sample from the baby and send it to Colorado for the dna analysis ASAP. There are only a few places that do this type of dna analysis and a university in Colorado is one of them. If the insurance says no then I don't know how we are going to be able to pay to have this done. :( .. I really want to have this done to my baby asap to find out and have peace of mind...... :(

[bunny]

another prayer for you and your son and that the insurance co. does the right thing and oks the test for you.

[AzuAngel]

thank you for your prayers!

[SSIAnkie]

I will keep Baby Jason and your family in my prayers. You're wait has to be tough. I will also say a prayer that you're insurance company will do the right thing and approve this test. Hugs to you!

[utkd29]

Still praying for you and Jason. Hope you get answers soon.

[AzuAngel]

Thank you everyone! I appreciate your prayers more than u will ever know!

[AzuAngel]

thank you all for your prayers!

THE INSURANCE HAS OK'D THE TEST FOR THE BABY!!!

I will be taking Jason to get some blood drawn tomorrow...

I should know the results by January 5th, 2009... this seems like a long time!:( ;)

[GeorgiaMom]

I'll be praying for everything to turn out fine. One prayer has been answered already with the insurance company paying for the tests!

I know it's gonna be hard waiting for the results, but at least either way now the end is in sight and if the tests come back positive for anything, your son will be able to receive any care he needs soon. Try to sit back and just enjoy him right now! Don't let any worries and stress cloud your holidays...especially since they are the first ones with your son!

[AzuAngel]

thank you so much! and I agree with u I cant let this stress me out especially with the holidays here... :)

[bunny]

thank you all for your prayers!

THE INSURANCE HAS OK'D THE TEST FOR THE BABY!!!

I will be taking Jason to get some blood drawn tomorrow...

I should know the results by January 5th, 2009... this seems like a long time!:( ;)

That is great news. I know it seems to take forever but enjoy the holidays and start fresh with the luck of a new year.(((HUGS)))

[twowhit]

great news about the insurance! prayers are continuing for jason's health. the holidays will help the time go by faster for you... relax & enjoy playing with him.

[AzuAngel]

thank you so much!!

I am enjoying my baby right now so much I love it! :D

thank you all for ur prayers.......

[ALawicki]

I will be praying for the best for little Jason!! Like everyone said, don't stress, it just makes it worse. I know God is looking over him, and with all our prayers I am sure he will take care of him.:D

[AzuAngel]

Well just wanted to update everyone on how Jason is doing.... He is getting so big everyday... omg he is just a joy and a blessing to have...

Here is a picture of him I did with paint shop pro... (he is 2 1/2 months old in the pic) :eek:

2621

now it is less than a month to find out the results of the dna test!!!

[Cpogie]

Well just wanted to update everyone on how Jason is doing.... He is getting so big everyday... omg he is just a joy and a blessing to have...

Here is a picture of him I did with paint shop pro... (he is 2 1/2 months old in the pic) :eek:

2621

now it is less than a month to find out the results of the dna test!!!

Oh my gosh, he is getting so big!! What a cutie, you should be very proud.

[angel195888]

What a DOLL, may God continue to bless him and all around him.....MERRY CHRISTMAS!!!!!!!!!!!!!!!!!

[SSIAnkie]

Baby Jason is such a cutie! How lucky you are to be so blessed! :D

[Jess0587]

Well just wanted to update everyone on how Jason is doing.... He is getting so big everyday... omg he is just a joy and a blessing to have...

Here is a picture of him I did with paint shop pro... (he is 2 1/2 months old in the pic) :eek:

2621

now it is less than a month to find out the results of the dna test!!!

He is so darn cute!!!! You are so blessed!!! ;)

[AzuAngel]

Thank you everyone!!!! yeah I FEEL SO BLESSED!!!!!!:D He is my WHOLE life!!!

Merry Christmas 2 everyone :D

[wicked1]

Absolutely toooo Cute!! God bless!

[AzuAngel]

Thank you!!!


I also want to give a huge thank you to Nancy!!!! thanx a lot for jason's gift and mine as well... I love it!!!! Will take him some pictures and post them so u can see him in his little christmas outfit! :D THANK YOU ONCE AGAIN!!!!

[MandMnmbr3]

Lidia, I've been reading and praying for Jason. I just haven't posted. Won't belong before you have his results.

OMGosh he is ADORABLE!!! I want to kiss his chubby cheeks!!

Hugs,
Mae

Well just wanted to update everyone on how Jason is doing.... He is getting so big everyday... omg he is just a joy and a blessing to have...

Here is a picture of him I did with paint shop pro... (he is 2 1/2 months old in the pic) :eek:

2621

now it is less than a month to find out the results of the dna test!!!

[AzuAngel]

Lidia, I've been reading and praying for Jason. I just haven't posted. Won't belong before you have his results.

OMGosh he is ADORABLE!!! I want to kiss his chubby cheeks!!

Hugs,
Mae

:D lol yeah he has super chubby cheeks lol.. I love kissing them as well... You can 2!!! :D and thanks for your prayers... :o

[AzuAngel]

26432644

here are some pictures of Jason with the outfit Nancy gave him... :D THANK YOU NANCY ONCE AGAIN!!!

[AzuAngel]

I hope I get a call from the hospital soon!!!!!!!!!! They said that if my sons results come back negative then I do not have to go to the appointment on Jan. 5th!:) but if they come back positive then I have to go to the appointment so that they can explain EVERYTHING and then some!!!:(

Well I am praying I get a call soon!!!! I will be glued to my phone waiting for that call!!!!;)

[2550]

He is really cute! What a wonderful Christmas you're going to have with that precious angel!

[Cpogie]

What a cutie, and the outfit is adorable! He sure is ready for Christmas. We'll be praying that all goes well with the results.

[AzuAngel]

:( still no call from the hospital... I am getting SO WORRIED!!!!!!!!! :(

[rebate queen]

Lidia, how beautiful he is!!

Sorry that I'm just now seeing the thread, but I read the whole thing!

Carol is right about the docs. They don't care that you are glued to the phone waiting for that call. If I was you, I would call once a day. This way you find out as soon as possible. I am sincerely hoping for the best.:)

[ALawicki]

Maybe you are having the "no news is good news" type thing. Maybe they are not getting back to you so quickly because it is good news. I will pray that is what it is. Jason in his little santa costume is SO cute!!:D

[AzuAngel]

Thank you Dawn and Ashley!!!
I sure hope that is the situation.. I have the appointment to the hospital on monday:eek: :( I hope they say "we are so sorry for having made you come but your son is o.k. so you can go home now" :D


Here is the picture of Jason in his santa costume Ashley is talking about...:)
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[rebate queen]

Thank you Dawn and Ashley!!!
I sure hope that is the situation.. I have the appointment to the hospital on monday:eek: :( I hope they say "we are so sorry for having made you come but your son is o.k. so you can go home now" :D


Here is the picture of Jason in his santa costume Ashley is talking about...
2663

OMG!! That pic is too cute!:D

[momsangel]

How adorable, he such a good looking little man!!

[AzuAngel]

thank you!!! :D


I called and should get a call back from a nurse with in a couple of hours if not sooner telling me if they have the dna results or not... I have never been so nervous before in my life as I am right now...

[Cpogie]

I'm thinking about you all and praying for everything to be just fine.

[AzuAngel]

thank you Carol! you have no idea how much that means to me! :)

[AzuAngel]

just got off the phone with one of the nurses... she said they still don't have the results... she called the dna lab in Colorado and they were closed...:( I am going to have to reschedule the appointment ... so still more waiting....:(

[cooking4]

My prayers are with you and Jason....He is such a cute boy! Hope you don't have to wait much longer.

[Cpogie]

just got off the phone with one of the nurses... she said they still don't have the results... she called the dna lab in Colorado and they were closed...:( I am going to have to reschedule the appointment ... so still more waiting....:(

Oh my gosh! that is just the pitts to make you wait longer. If you were famous you would of had those results asap..I'm so sorry they are putting you through this. How about the doctor? you think he would of had the results by now? just a thought. Hugs and more prayers, hang in there mom.

[AzuAngel]

to get the results for this kind of test it usually takes around 6 or 7weeks :rolleyes: I am thinking since there has been many holidays since the babies blood was taken and sent for testing it is taking sooooooo long... I just want the tests to come back negative!!! :)

Scott Baio, best known as Chachi from "Happy Days," also had a scare with this possibly deadly metabolic disorder (Gluteric Acidemia Type 1). The result was found during his little girl Bailey's newborn screening test and fortunately, it was a false positive test result. They did a dna test on a piece of skin from the babies arm and that is how they found out it was a false positive!

I HOPE I HAVE THE SAME OUTCOME!!!

the babies new appointment is on January 22nd..:)

I am feeling positive about this whole situation right now... :D (my feelings keep changing so often....)

[wicked1]

Keep those positive thoughts, ok? There are lots of people here that sincerely care. Lots of prayers headed your way! :)

[Dreamie61]

Hang in there.......Thoughts and prayers for you and your beautiful baby!!!!

2668

[onefearlesswoman]

Keeping you guys in my thoughts and prayers:)

[NancyBJ]

Still sending you a ton of prayers and positive thoughts....he is SOOOO cute!:D Victoria wanted me to print out a picture of him so she could keep it on her mirror-the girls are oohing all over all the new pictures you put up- how could you not!:D
Love and hugs,
Nancy :)

[Motherofthree]

Thinking of you Lidia and baby Jason. Hugs!

[rebate queen]

Hope you are still having positive thoughts! A little peace of mind makes all the difference in the world!:)

[AzuAngel]

Thank you everyone!!!

right now I am jut having so much fun with Jason.. He loves to talk.... there have been a few times that at night he wakes up and then screams until I wake up and start talking to him about our day... once we finish talking he goes right back to sleep...;) So yes I am still keeping those positive thoughts! :D



Jason and all of his loved ones (especially his mommy;) ) thank you from the bottom of our hearts all the prayers!!! :D

[caryn]

I"m sorry to hear that you are having to go through all of this! I just now read the whole thread for the first time. Know that your baby and you and you family are in my prayers.

Your next scheduled appointment is on my oldest daughters birthday. That has to mean that it is good news!:) Think positive and enjoy your son. He is simply adorable. I love that you are sharing the pictures with us. We get to watch his grow!

[SSIAnkie]

I am sorry you are having to wait so long for the test that has been done. Waiting is the worst. Keep those positive thoughts going. Jason is the most beautiful baby! You have been blessed! You and you're family will be in my prayers! Give baby Jason a big hug from me. :) He is beautiful!

[AzuAngel]

Thank you Caryn and Kim!!! I am enjoying my son like nothing else.... he is getting so big! Kim I sure will give Jason a big hug for you... well maybe more than one lol...

I am going to try and remember to call tomorrow to see if they have any news for me! *crossing fingers and wishing for the best*

[bunny]

I hope they can give some news today. I'm sending out some prayers for you and Jason.

[Cpogie]

I hope you get an answer today, just know that we are praying for a positive outcome, and lots of hugs for you and Jason. He is so adorable.

[AzuAngel]

I am calling right now... I am on hold... so nervous........................................... ......................

AHHHHHHHHHHH!!!!!!!!!!!!!!!!!!!


they are very busy right now... ( I have been there when they are busy and it can get pretty crazy) so they willl call me back in a while.... I wished this hospital was bigger so that all the children that need their attention could get it...

It is the only Children's hospital between San Francisco and Los Angeles... so they have so many children that go there... I hate going to the hospital because when I see the lil children it makes me want to cry so much... after I leave the hospital I do cry... can't helpt it...

[wicked1]

Thank you for keeping us posted. My prayers are with you and your family.

[jessiegirl]

Lidia, I just wanted to let you know that though I haven't posted here that I have been thinking and praying for baby Jason along with your whole family. It seems like you are holding up very well considering the circumstances. Congratulations on your absolutely beautiful baby and keep those positive thoughts up.

[ALawicki]

Hope you get answers soon! I am still praying for little Jason and your family! Let us know when you get answers so we know if we need to step up our prayers for him. Let me know if you need anything also dear. You know I am here anytime you need me:o

[onefearlesswoman]

Just letting you know you and Baby Jason are in my thoughts and prayers...

[AzuAngel]

I just finished talking to Jasons doctor and he said they have the results back! He said that the dna test shows there is nothing abnormal in his genes....:D that makes me soooooooooooo super mega extra HAPPY!!!! :D lol...
I am so thankful for that! and of course everyones prayers! He said "if you want my opinion I would say that Jason does not and I repeat does not have Gluteric Acidemia Type 1."
but to be on the extra safe side he said that he wants to run another urine test on Jason (since the dna test is not 100% accurate). He said that when Jason gets sick such as gets a high fever to take my son to his pediatrician or to the childrens hospital so that they can get a urine sample. The doctor wants to see if everything stays "normal" when Jason is sick and that nothing comes up elevated during sick time. If everything is normal then there will be absolutely no more tests to be done and he will put on my sons medical record that Jason does not have GA-1!!!

I am confident that everything is great with my son and that he does not have this horrible disease!!!I AM SO HAPPY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !!!! You have no idea how happy I am right now!!! I am going to cry if happiness!!! THANK YOU EVERYONE for listening to me and praying for my son and my family! I am forever thankful!

[GeorgiaMom]

What wonderful news! Now you can truly relax and just enjoy being a mom!!!! I'm so happy for you guys!!

[onefearlesswoman]

I am so happy for you! God works wonders!!!!:)

[Cpogie]

Lidia, that brought tears of joy to hear this for you and your family. That was the best news!! I'm just so sorry you had to wait for so long, but the wait is over and now it is time to put this behind you. YEAH!!! Prayers work. This story has the best ending. Thanks for letting us know!! HUGS

[bunny]

what a great relief you must feel with this fabulous news. I am so very happy for you and Jason.

[AzuAngel]

thank you everyone! :D I cant wait til the day gets here that the doctor will put on my sons record that he does not have GA-1...

Now I am just going to spoil my son lol... and I also can plan for his little sister!;) I had decided that if my son had GA-1 I would not have any more children.. I didnt want to run the risk of having another child with GA-1 and just bring them into this world to suffer... but now I can sure plan for my little princess... I got everything already lol.. just need the princess... ;)

[ALawicki]

I am SO happy that Jason is ok! I knew he would be with all these prayers. Now he can have a wonderful childhood!! Princess?! I bet she will be so beautiful when she comes into this world!! I can't wait to have a child, puppies will do for now!:D

[SSIAnkie]

Lidia, I am so happy for you and you're family. What thrilling news to hear that baby Jason doesn't have that gene. Now go and spoil that sweet baby! Enjoy every moment! They grow up so fast. Congratulations! :)

[wicked1]

Praise GOD! I am so thrilled to hear this wonderful news!
I know it's like a ton of bricks have been lifted from your shoulders! Now, give that beautiful baby lots of gentle hugs and kisses from everone here at SS! :D

[2550]

Yeah! I am so happy for all of you. Enjoy that beautiful baby, now!

[twowhit]

I just read your news Lidia... I'm SO happy for you!!

[NancyBJ]

I haven't been on in a while...I just read the news! :D :D
How wonderful!!!!!!!!! That is fantastic!!!!! Now you can just kiss him, spoil him, hug him and love him without any worries! :D

Hugs and love,
Nancy :)

[missinformation]

I just started on these posts. So happy that your adorable little chunk of a guy is healthy! He is soooo cute!!! I could just kiss those chubby little cheeks of his!

[AzuAngel]

Well I took Jason to his 6 month check up! I can't believe it has been 6 months since he was born!! time sure does fly! He is so big.

Anyways, Jason's doctor is going to refer us to a Urologist. This is because one of his test!cles still has not descended :(... So they might have to do some surgery to help that out. Jason also has a check up with his Geneticist in June. They want to make sure he is doing well (since they still haven't cleared him on the Gluteric Acidemia Type 1 disease completely). I just want time to fly by and for my son to be fine! I hate all of this but in a way am glad because it makes me appreciate my son so much more!

[SSIAnkie]

Continuing to keep baby Jason and your family in my prayers.

[Cpogie]

Well I took Jason to his 6 month check up! I can't believe it has been 6 months since he was born!! time sure does fly! He is so big.

Anyways, Jason's doctor is going to refer us to a Urologist. This is because one of his test!cles still has not descended :(... So they might have to do some surgery to help that out. Jason also has a check up with his Geneticist in June. They want to make sure he is doing well (since they still haven't cleared him on the Gluteric Acidemia Type 1 disease completely). I just want time to fly by and for my son to be fine! I hate all of this but in a way am glad because it makes me appreciate my son so much more!

Wow, 6 months already, time sure does fly! I will keep Jason in my prayers, hopefully he will not need surgery.

[AzuAngel]

http://i13.photobucket.com/albums/a287/azucenamz/startsampling/jasonamoamami.jpg A new picture of Jason! :D


Thank you ladies for your prayers! It means the world to me!

[Cpogie]

Oh my gosh, I just want to squeeze him, what a cutie!!

[ALawicki]

He is just so freaking cute. I will be praying for him and you dear. He sure has had it rough. If you need anything I am here for you.

[Jess0587]

I will keep baby Jason and you in my prayers. He's so handsome!! :)

[AzuAngel]

Thank You!!!! you ladies are the best! :D Jason sends hugs to all of you lol...

[momsangel]

FUture heartBreaker in the making!!:D:D
He is soo adorable, you are blessed with a BEAUTIFUL young man

[2550]

He is a sweetie!

[utkd29]

Sending prayers for Jason. I hope everything turns out well. :)

[AzuAngel]

Thank You ladies!!!! It means a lot!!!! :D

[canoes88]

I will pray for you and your son.

[SSIAnkie]

Lidia, baby Jason is absolutely beautiful! Jason and your family are in my prayers.

[rebate queen]

awwww, you are a lucky mommy!!;)

[Motherofthree]

Lidia!! He is sooo handsome! Praying everything will be fine!! I know it will be.. Hugs...

[KimberN]

http://i13.photobucket.com/albums/a287/azucenamz/startsampling/jasonamoamami.jpg A new picture of Jason! :D


Thank you ladies for your prayers! It means the world to me!

WOW ~ he is gorgeous! {HUGS} and please keep us posted! He is in my prayers!

[AzuAngel]

Thank You all for your prayers! We appreciate them from the bottom of our hearts! I sure will keep you all updated. :)

[Texmel]

Wow, he has grown so much since the last photo I saw! Healing and blessing to come your way!

[wicked1]

AWWwww. All of you are in my thoughts and prayers. He is just too adorable!!

[MandMnmbr3]

Lidia... Oh My Goodness, what an ADORABLE baby Jason is!!!! I LOVE his chubby cheeks, and look at his double chin, just tooo cute!!!!!! He will definitely be kept in my prayers!!

Hugs!

[AzuAngel]

Thank you all for your prayers! I could never thank you enough!

Well I should be hearing from the Urologist in a couple of weeks to see what is the next step to getting Jason all better! The day we go in to the hospital Jason is going to have some blood tests as well as an ultrasound...

We will be taking him to the Children's Hospital of Central California (http://www.childrenscentralcal.org/Pages/Default.aspx). That is where his Geneticist is at also. I hope they call or send the appointment letter soon! I want Jason to be done with all of this. :)


Here are two recent pictures of Jason:
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[utkd29]

He is adorable!! :)

Hope all news is good when you go in.

[Cpogie]

What a cutie! He sure is a happy baby, always smiling!! I hope everything goes well for Jason, your in good hands at that hospital!! Keep us posted.

[rebate queen]

Those pics are precious!;)

[MandMnmbr3]

Jason is just too cute. LOVE his smile, it's contagious!!! :D I pray all goes well for him and your family.

hugs,
Mae


Thank you all for your prayers! I could never thank you enough!

Well I should be hearing from the Urologist in a couple of weeks to see what is the next step to getting Jason all better! The day we go in to the hospital Jason is going to have some blood tests as well as an ultrasound...

We will be taking him to the Children's Hospital of Central California (http://www.childrenscentralcal.org/Pages/Default.aspx). That is where his Geneticist is at also. I hope they call or send the appointment letter soon! I want Jason to be done with all of this. :)


Here are two recent pictures of Jason:
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2893

[whiteheadsr]

He is so cute,, and looks so happy!!! I will be praying for you guys that everything goes well.

[twowhit]

what a cutie!! keeping you all in my prayers

[onefearlesswoman]

He is too cute... I miss little ones!

[MandMnmbr3]

Lidia, how's the little cutie doing? How's Mom and Dad? Keeping you all in my prayers.

Hugs,
Mae

[AzuAngel]

Hi Mae, well Jason is doing great. He likes to stand up and walk in his walker. He can't crawl and I don't think he is going to lol. In a month I will be taking him to the children's hospital to talk to his Geneticist. I just pray that this is the last time I have to see them:rolleyes:. Other than that we are all doing great. We move into our own home in a month and I am excited!

:)

[MandMnmbr3]

Lidia, so good to hear that you are all doing well! Funny that yu said Jason doesn't crawl. It reminded me of my nephew Jason, he didn't crawl either. He started walking by himself at 7 months as long as he was holding a bathrobe tie...LOL! If you took the tie out of his hands he'd fall to the ground, it was s funny!!

I'll say a special prayer that all goes well at the Geneticist visit.

Congrats on the house!!! That is indeed exciting!!!

Have a wonderful Memorial Day weekend!

Hugs,
Mae


Hi Mae, well Jason is doing great. He likes to stand up and walk in his walker. He can't crawl and I don't think he is going to lol. In a month I will be taking him to the children's hospital to talk to his Geneticist. I just pray that this is the last time I have to see them:rolleyes:. Other than that we are all doing great. We move into our own home in a month and I am excited!

:)

[wicked1]

I'm glad to hear things are going well for you!

[canoes88]

thoughts and prayers for you jason:)

[MandMnmbr3]

Lidia, keeping Jason as well as you and your hubby in my prayers. Did you get all moved into your house?

Hugs,
Mae

[AzuAngel]

Lidia, keeping Jason as well as you and your hubby in my prayers. Did you get all moved into your house?

Hugs,
Mae

Hi Mae! no we haven't moved into our home yet. A couple more weeks :eek:. I have to start packing :( I don't like that part lol.


Today I received a call from his geneticist and we had to reschedule his appointment because he was not going to be working that day. Jasons next appointment is on July 9th. Now I have to get a hold of the Urologist :rolleyes:. Last time we called they said they had not gotten the referall for Jason. Hopefully there was not a mixup again :rolleyes:.

[MandMnmbr3]

I hate the packing part of moving too.

I hope that there isn't a mix-up with the paperwork for the referral. I've had that happen to me and it's such a hassle to get straightened out! Good luck!

Hugs,
Mae

[utkd29]

Praying for good news on the 9th!!

Get to packing girl...hope you enjoy your new place :D

[rebate queen]

thinking of you...have a great weekend;)

[AzuAngel]

Today we went to take Jason to the see the geneticist. He was explaining everything in more detail. Even though the dna test came back normal he said that it is about 95-97% accurate. So there is still a chance that Jason might have GA-1. This seems to be never ending!:mad::(... He was also explaining how it is easier to prove you have the disease than to prove you do not have this disease. Since this disease is so dangerous every doctor will want to do many tests until there is almost no chance of Jason having the disease. The only thing left is to do a skin biopsy :( . They are supposed to call me tomorrow to tell me when this will be done. I hate that this has to be done but we just want all of this to be over with.

Tomorrow we are also taking Jason to the urologist to do some ultrasounds. I hope they have good news!

Thank you all for your prayers! They mean so much! :o

[wicked1]

Continued prayers for little Jason and all your family. I can't begin to imagine how very difficult this must be for all of you. Sounds as if you have some very good doctors. We're waiting to hear good news, now. Thanks for letting us know.

[utkd29]

Oh my...sending lots of hugs and prayers that the news continues to be good. Hopefully they can give you all the answers soon. It must be hard playing the waiting game. :(

[Cpogie]

I hope everything went well at the doctors today. Continued prayers for Jason, you, Dh and your family. I'm praying that Jason is in the 97% without that GA-1!! HUGS

[SSIAnkie]

Baby Jason and your family are in my prayers. Prayers work! Hang in there Lidia...the waiting is the toughest. Sending lots of love and hugs!

[AzuAngel]

Well today we went to see the urologist and she says that they will need to do an operation on Jason. They will give him general anesthesia then with a little camera look to see how things are. Then they will do the operation. I won't be able to be in the OR with my son. I was also told that Jason is now at a higher risk of developing testicular cancer when he grows up :(..... This all just makes me so sad and frustrated! But I know God does things for a reason, and I am very thankful with him for giving me my son.

Hopefully this weekend we will take a trip to the mountains to take our minds off all of this.

Thank you all for your continued prayers! May God bless you all!!!!

[Cpogie]

Well today we went to see the urologist and she says that they will need to do an operation on Jason. They will give him general anesthesia then with a little camera look to see how things are. Then they will do the operation. I won't be able to be in the OR with my son. I was also told that Jason is now at a higher risk of developing testicular cancer when he grows up :(..... This all just makes me so sad and frustrated! But I know God does things for a reason, and I am very thankful with him for giving me my son.

Hopefully this weekend we will take a trip to the mountains to take our minds off all of this.

Thank you all for your continued prayers! May God bless you all!!!!

I will continue to pray for Jason as well as you and your family. Thank you for the update. Stay positive. HUGS

[SSIAnkie]

Continuing with prayers for baby Jason and your family. Keep the faith! Love & Hugs!

[wicked1]

Continued prayers for Jason. Poor little thing. This must be so hard on all of you. I hope you are able to get away this weekend. It will do all of you a world of good! Thanks for keeping us informed.

[AzuAngel]

Thank you for all your prayers they mean so much! We were able to go to Sequoia National Park and we had so much fun! I will try to put up a picture of Jason later on. Once again thank you all!

[dreamweaver236]

my prayers are with jason. :)

[wicked1]

Continued prayers. Glad all of you had a good time. Looking forward to the pics!

[AzuAngel]

We finally know when Jason's surgery and biopsy will be. On August 27th the skin biopsy will be done, and on September 21st (my brothers bday and 1 day shy of Jason's bday) he will have the surgery done. I pray all goes well on those days. I am so scared and nervous about it but I know it will all go well with God's help.

[wicked1]

Thanks for the info. Jason is in my daily prayers. Easier said than done, but, try not to be too nervous. You don't want Jason to pick up on that. He won't be scared if you're not. Well, at least fake it real good. Just trying to make you smile. It's hard to be strong sometimes, but that's God's department, and he will see you, Jason, and family, through this. Without going back too far on this thread, how old will Jason be in September? One year? He sure is a sweetie!

[AzuAngel]

Thank you :). I try to be as upbeat and happy around Jason as possible because like you said I don't want him to worry as well. Jason will be turning 1 year old on Semptember 22nd. Time sure does fly.

[SSIAnkie]

Baby Jason and your family are still in my prayers. Hang in there!

[cath_31]

I read through this thread and am so sorry to hear all that has been going on. What an emotionally rough year it sounds like it's been. Luckily you sound like you have the right attitude. I am glad that you are enjoying your son so much, he is just adorable!! Keep your faith that all will turn out fine. Best wishes to all of you.

[AzuAngel]

Here are pictures of Jason and from the day we went to Sequoia National Park. :)....

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3009

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3011

3012

[AzuAngel]

http://i13.photobucket.com/albums/a287/azucenamz/startsampling/DSC09504.jpg

The view of the mountains as I was walking up Moro Rock.

[SSIAnkie]

Baby Jason is the cutest baby! :):D

[Cpogie]

Thank you for sharing these beautiful pictures with us, Jason is just the cutest thing I have seen today!! I just want to squeeze him.

[AzuAngel]

:) He is such a happy baby and he loves to take pictures. I am happy to be able to share these pictures with all of you.

[wicked1]

Great scenic pictures, and even greater ones of Baby Jason! He is just adorable. I just want to kiss his little cheeks! Thank you so much for sharing these pics! :D

[mspete]

Wonderful pictures especially those of baby Jason! I surely would like to hold him and kiss his sweet face. Thank you for sharing.

[2550]

What great photos. And of course what a handsome little man Jason is! He is so sweet...

[MandMnmbr3]

Lidia, Jason is just too cute!! I want to kiss his chubby cheeks!!!! :D

Hugs!

[MandMnmbr3]

Lidia, I can sympathize with you not on a Mother's point of view but as a Grandmothers regarding general anesthesia. It is very scary for you as a Mom. But, please know, God will be watching over Jason, as well as the Dr's and nurses who are caring for him during his surgery. That's what has got me through, as well as Richard, Kim, and the rest of our family while Cashton had surgeries.

The little ones are pretty quick in recovering after surgery. They will do do anything that is going to hurt themselves. If it hurts, they'll stop.

Praying Jason will beat the odds and NOT develop testicular cancer as an adult.

Hugs!!


Well today we went to see the urologist and she says that they will need to do an operation on Jason. They will give him general anesthesia then with a little camera look to see how things are. Then they will do the operation. I won't be able to be in the OR with my son. I was also told that Jason is now at a higher risk of developing testicular cancer when he grows up :(..... This all just makes me so sad and frustrated! But I know God does things for a reason, and I am very thankful with him for giving me my son.

Hopefully this weekend we will take a trip to the mountains to take our minds off all of this.

Thank you all for your continued prayers! May God bless you all!!!!

We finally know when Jason's surgery and biopsy will be. On August 27th the skin biopsy will be done, and on September 21st (my brothers bday and 1 day shy of Jason's bday) he will have the surgery done. I pray all goes well on those days. I am so scared and nervous about it but I know it will all go well with God's help.

[Cindy]

Thanks so much for sharing the pictures! He is just the happiest looking baby I've seen! My prayers are with you and your family!

[AzuAngel]

Thank you so much everyone your prayers mean so much to my family. Tomorrow at night my inlaws should be arriving here and they will finally get to meet Jason. I am sure Jason will have a blast with his grandparents, aunt and uncle. :)

[utkd29]

Great pictures. He is so photogenic!!:)

[NancyBJ]

Well today we went to see the urologist and she says that they will need to do an operation on Jason. They will give him general anesthesia then with a little camera look to see how things are. Then they will do the operation. I won't be able to be in the OR with my son. I was also told that Jason is now at a higher risk of developing testicular cancer when he grows up :(..... This all just makes me so sad and frustrated! But I know God does things for a reason, and I am very thankful with him for giving me my son.

Hopefully this weekend we will take a trip to the mountains to take our minds off all of this.

Thank you all for your continued prayers! May God bless you all!!!!

First, I have to say- after being away from here for so long- sorry! ( my surgery, vacation, etc.) I had to read to catch up) OMG! How he has grown ...and how CUTE is he...OOOOOO, I just want to squeeze his little cheeks! The girls are oohing and awwing over him too!

Did they say what the operation the urologist is going to do? I am just wondering? They will let you be in the recovery room with him- and know the the OR nurses will take care of him like he is THEIR son! Every operation we go into with a little one on the table that is how we feel- you need to know that. ( i just renewed my license online today)

I will keep Jason and you in my prayers... sending you tons of postive thoughts too!

Hugs and love,
Nancy :)

[AzuAngel]

Today Jason had the biopsy done and he did great. We will know the results of it in about 6 weeks. I want to thank everyone for your continued prayers. They mean so much to us.

25 more days until his surgery.... I want them to go by fast so we can get all of this over with. I am tired of all of this and I know my son is sick of them also.

[wicked1]

Thank you for keeping us updated on Baby Jason. Big hugs and prayers for all of you.

[AzuAngel]

I can't believe surgery day is almost here... His surgery is on monday and we have to be at the hospital by 6 a.m. He will be the first one to have a surgery that day. Surgery will take around 1 1/2 hours. I bet they will be the longest hours of my life. We will be at the hospital until the afternoon when he will be able to go home. I pray everything goes well.

[Cpogie]

We will be praying for eveything to go well for Jason, as well as prayers for you and Dh, his doctor and all of his caregivers. Please keep us posted. HUGS

[mspete]

Your family is in my thoughts and prayers. May God hold you all in the palm of his hand.

[lizval99]

I can't believe surgery day is almost here... His surgery is on monday and we have to be at the hospital by 6 a.m. He will be the first one to have a surgery that day. Surgery will take around 1 1/2 hours. I bet they will be the longest hours of my life. We will be at the hospital until the afternoon when he will be able to go home. I pray everything goes well.


I'll be praying for Jason Monday morning. My son had surgery when he was 9 months old and again about a year later. I remember how awful it was sitting in the waiting room and how hard I prayed for him and the surgical staff. I almost knocked the nurse down when they finally let me back into the recovery room because I was desperate to get to him. I know God and His Angels will watch over your child when you can't. Let us know how it goes.

[twowhit]

thoughts & prayers for that adorable little boy... & all your family... as he has his surgery Monday morning. keep us posted.

[wicked1]

Thoughts and prayers for baby Jason, you, family and medical staff. I'll be thinking of all of you this Monday. Keep us updated when you can.

[SSIAnkie]

Keeping your sweet baby Jason and your family in my thoughts and prayers. I will be thinking of you guys on Monday. Hope all goes well and he is much better soon.

[AzuAngel]

Thank you all it means so much to me! more than you will ever imagine. I will update you all once we get back home on monday. Thank you all once again! HUGS!

[we3kings]

Praying for Jason's surgery to go well, and a quick recovery.

[AzuAngel]

We got home about 3 1/2 hours ago. His surgery went great, and it took 2 hours and 10 mins to complete. Jason right now is still sleepy from the anesthesia and the lack of sleep last night. He has 4 incisions but they look fine and hopefully they will remain that way. I would hate for him to get an infection or anything bad. I just wanted to thank everyone for your continued prayers for my son.

[Cpogie]

Thank God everything went well for Jason. I'm sure you and Dh are relieved!! I bet you'll sleep better tonight....thanks for letting us know how everything went today. Hugs to you all....and an extra squeeze for Jason.

[lizval99]

Great News!
I am so glad that things went well.
Keep us posted as he recovers!

[SSIAnkie]

So glad to hear this news. Continuing to keep Jason and your family in my prayers.

[mspete]

That is great news. I will continue to remember Jason in my prayers. God bless.

[momsangel]

Glad it went well, hugs,prayers and postive thoughts for you all

[Cpogie]

How is Jason doing today? How are you doing??

[twowhit]

great news! keeping you all in my prayers

[wicked1]

Great news! Thanks for letting us know. Continued prayers for fast healing.

[AzuAngel]

Thank you all for your prayers!

Jason yesterday turned 1 year old! I can't believe how fast time has passed. He was active yesterday almost as much as he was before surgery. He was up and walking around the furniture, crawling, and playing with his toys. He really hasn't complained, cried, been nauseated or anything like that. At night after an active day he does cry a little but after I give him his medicine and sing him to sleep he is ok. His incisions are looking ok. One of them is starting to look bruised up but the doctor had warned us about it. I am not worried about it but I still don't like my son to look bruised up. Other than that he is back to normal. Thank you all once again for your prayers. HUGS!

[SSIAnkie]

I am so glad he is doing so well. Continuing to keep you all in my prayers. Prayers work!

[Cpogie]

I'm so glad to hear he is doing so well, and happy belated birthday to your young man!!

[wicked1]

Happy Belated Birthday, Jason! I'm so happy to hear you are doing well! :D

[MandMnmbr3]

Lidia... So happy to hear Jason's surgery went well. Babies are amazing when it comes to healing. They won't do anything if it hurts to do it. Happy Belated 1st Birthday Jason!! YES, time sure does go by fast, so hold on to the days while he is small! God Bless!

Hugs,
Mae

[onefearlesswoman]

Enjoy him while he is little, time goes by to quick! Keeping all of you in my thoughts and prayers.

[AzuAngel]

Thank you all!

One of Jason's incisions is a little bit infected but not so much to prescribe antibiotics :rolleyes:. He has been a little more quiet than usual though not so talkative. I miss that about him. I will try to post up a picture soon when I have some time.

[wicked1]

I'm just glad to hear he is doing so well. Don't worry, Jason will be talking up a storm again, real soon. Thanks for letting us know, and I'm looking forward to some pics when you have time. Now, you take care of YOU! :D

[MandMnmbr3]

Lidia, how is Jason feeling?? Better I hope!

Hugs,
Mae

[tommy01]

even though it maybe a long way from home for you but God will be there when you get there and he has already fixed it for your baby his coming out as pure gold and children hospital is the best place for all children i take mine there too. Your in my prayers. God Bless you.

[AzuAngel]

Jason is doing better each day and I just hope that it stays that way. In a month he will be checked again to see if everything is great now or if they will have to redo the surgery.

I am going to try and see if the hospital has gotten back the results for the biopsy. Hopefully they have or will have them in then few days. I want to know the results so bad it is driving me crazy sometimes.

[wicked1]

Hang in there, Kiddo. Prayers for all of you.

[AzuAngel]

Just got off the phone with the hospital. They still have not gotten back his biopsy results. One of the doctors is going to call the lab and see what is up with that since they should have already received them. As soon as they know if the tests are done they will call me to tell me the results. I am so nervous. I want the doctor to call me today and tell me everything is fine and that I will never have to see them again.

[Cpogie]

I am saying a prayer right now for you all. I hope the doctor calls you back today also....I wonder if they honestly know what stress they put on you. God Bless. Please keep us posted. HUGS

[2550]

Prayers that you will get the results soon and that they will be exactly what you want them to be. I really don't think that they realize what stress and anxiety they cause when the results don't come back quickly.

[ibeapoet]

Bless you I'll be sending up prayers that you get the results that you want.

[AzuAngel]

A week ago Jason had some other blood tests done that his doctor ordered. Well now they tell me that he wants to talk to us about the results in his office. I am thinking is some bad news? If everything was fine wouldn't they just leave us alone or say something through the phone? I try not to worry but I just can't help it. I will know what the results are on Tuesday.

Thank you everyone for your prayers. HUGS!!!!

[Cpogie]

Hopefully it is good news, perhaps he has the results from the other tests by then. I know you have been a wreck for over a year. I will be praying for you all....hugs.

[momsangel]

Positive thoughts on the test results!!

[twowhit]

maybe the doctor wants to tell you "goodby" in person because Jason's biopsy results & blood tests are fine, & he won't need to see you again. Hugs, prayers, & positive thoughts going out to you.

[wicked1]

Continued prayers for all of you. You are very strong and brave. All of you have been through so much. Keep positive thoughts. Many are going your way!

[MandMnmbr3]

{{{Lidia}}} our continued prayers are being offered for Jason, as well as you and your hubby!

[AzuAngel]

Today we went to see Jason's pediatrician for the blood test results. The doctor says that Jason is very anemic now. He will have to take iron for 2 months, and then he will have some more blood tests done. I feel like I am a bad mother now which I know I am not. I just wish we would know the results for the biopsy. I know the geneticist is doing all he can but I just want to know so badly if my son has GA-1 or not. That way I can feed Jason more protein and food rich in iron so that he wouldn't have gotten to this point as well. I try my best to be strong around my family and relatives but I know I am just torn inside. The only thing keeping me up and still happy is Jason. Even though he is anemic he still has so much energy to turn the house upside down :). Thank you for letting me vent a little here, and for your continued prayers!

[wicked1]

Sounds like anemia isn't going to stop the little guy! Try not to fret (easier said than done). It will be ok.

[rebate queen]

thinking of you;)

[mspete]

AzuAngel, Jason and you are in my prayers. I cannot imagine what it must be like to try to cope with a child who has so many difficulties. Try to stay positive (easier said than done). God bless!

[twowhit]

continued thoughts & prayers!!!

[MandMnmbr3]

Lidia, I was an anemic too when I was young and had to take liquid iron every day from the age of 4 until I was a teen. I can still remember the nasty taste of that thick red-orange syrup!! :p My parents said I was a tornado on toes with all the energy I had...LOL!! :eek:

Hun, YOU ARE NOT A BAD MOTHER!!!!!! I know you might feel like one, but, you ARE doing what is THE BEST for Jason!!

I hope you hear back soon with the test results. Still praying for your family hun!

{{{{{{BIG HUGS}}}}}}





Today we went to see Jason's pediatrician for the blood test results. The doctor says that Jason is very anemic now. He will have to take iron for 2 months, and then he will have some more blood tests done. I feel like I am a bad mother now which I know I am not. I just wish we would know the results for the biopsy. I know the geneticist is doing all he can but I just want to know so badly if my son has GA-1 or not. That way I can feed Jason more protein and food rich in iron so that he wouldn't have gotten to this point as well. I try my best to be strong around my family and relatives but I know I am just torn inside. The only thing keeping me up and still happy is Jason. Even though he is anemic he still has so much energy to turn the house upside down :). Thank you for letting me vent a little here, and for your continued prayers!

[AzuAngel]

I want to say thank you to everyone! On friday the genetecist finally called us and said that they have the test results. It is absolutely negative. Jason doesn't have GA-1. He said sorry for having made us go through all of this but that it was necessary. Jason doesn't have to go back to see him again. I am so relieved. Now Jason doesn't have to be taking the nasty medicine, and can eat whatever he wants. Thank you all for your prayers once more. :)

[rebate queen]

;)That is wonderful news! Congrats!

[Cpogie]

I want to say thank you to everyone! On friday the genetecist finally called us and said that they have the test results. It is absolutely negative. Jason doesn't have GA-1. He said sorry for having made us go through all of this but that it was necessary. Jason doesn't have to go back to see him again. I am so relieved. Now Jason doesn't have to be taking the nasty medicine, and can eat whatever he wants. Thank you all for your prayers once more. :)

Prayers answered!! That is the best news I have heard in a long time. Give Jason a huge hug from all of us.

[wicked1]

Praise be. That's wonderful news!!

[ibeapoet]

That's just the best news!!!! I'm tickled pink for u. {{HUGS}} for u all.

[twowhit]

that's WONDERFUL news!!! I'm so happy for you!

[MandMnmbr3]

Lidia, what WONDERFUL news!!! I am so happy for you and Jason!!!!! God is good and answers prayers!!!

BIG HUGS!!!!!



I want to say thank you to everyone! On friday the genetecist finally called us and said that they have the test results. It is absolutely negative. Jason doesn't have GA-1. He said sorry for having made us go through all of this but that it was necessary. Jason doesn't have to go back to see him again. I am so relieved. Now Jason doesn't have to be taking the nasty medicine, and can eat whatever he wants. Thank you all for your prayers once more. :)

[rhondamikaela]

I pray that your son is doing better. I haven't been here for awhile, so I am catching up. My prayers are with you and your family. God will always take care of his children.