Prayers needed-Baby Addison

[GeorgiaMom]

I've seen such wonderful things come from the prayers of the women on this forum, and I'm hoping you ladies are ready to start praying again.

Friends of my husband and I recently had a baby girl (Addison) born at just 26weeks gestation. Addison is in NICU and has been making some progress, but there have been setbacks as well. It's absolutely heartbreaking to see a child go through so much so early in life. You can go to www.carepages.com to read about her and see pictures of her. You have to set up an account to see her, but it's free. Her care page name is AddisonAdams.

[LadyPyro]

Count me in. Prayers for her, her family, and her caregivers (it's hard on them too, believe me) will be lifted up to God. Wish them all well. And I wish you well too, thanks for telling us.
Beth

[bvanpeltsw]

I've seen such wonderful things come from the prayers of the women on this forum, and I'm hoping you ladies are ready to start praying again.

Friends of my husband and I recently had a baby girl (Addison) born at just 26weeks gestation. Addison is in NICU and has been making some progress, but there have been setbacks as well. It's absolutely heartbreaking to see a child go through so much so early in life. You can go to www.carepages.com to read about her and see pictures of her. You have to set up an account to see her, but it's free. Her care page name is AddisonAdams.

This is right up my alley. I work for the March of Dimes and I work in the hospitals providing support to NICU families. If you know the name of the hospital then I can see if a March of Dimes NICU Family Support Project exists in the hospital. This would be a huge resource for this family. I could also send them some information. I know this is a very over-whelming time for them and any resource will help.

[Cpogie]

I just signed up and viewed all the pictures. She is so tiny, but in the best of care, Prayers for baby Addison, mom and dad, friends and family, and to all the doctors and nurses caring for her.
My SIL and BIL went through the same thing almost 5 years ago, their daughter was a preemie also and weighed only 1lb.9oz. she was in the hospital for 144 days if I remember correctly. Today she is a healthy, soon to be 5 yr. old.

[bvanpeltsw]

I just signed up and viewed all the pictures. She is so tiny, but in the best of care, Prayers for baby Addison, mom and dad, friends and family, and to all the doctors and nurses caring for her.
My SIL and BIL went through the same thing almost 5 years ago, their daughter was a preemie also and weighed only 1lb.9oz. she was in the hospital for 144 days if I remember correctly. Today she is a healthy, soon to be 5 yr. old.

Great success story Carol!!!

[mood4amelody]

I'll be saying prayers! Take heart, because Jesus loves the little children! HUGS for you, the little tiny baby and all her family!

[PVUgrad]

Just saw little Addie. She is small. Prayers and positive thoughts headed to her and mom and dad. You know she is getting the best of care at the Children Hospital.

[TAMMY293115]

They will be in my prayers. God Bless.

[momsangel]

They are in my thoughts and prayers...............

[VanillaBean]

Prayers are being sent from my family to yours!!!!!

[GeorgiaMom]

Thanks for all the prayers! I haven't heard anything today about her progress so I'm hoping no news is good news.

[utkd29]

Thanks for all the prayers! I haven't heard anything today about her progress so I'm hoping no news is good news.

Still sending up prayers. Thanks for keeping us updated.

[momsangel]

Thanks for all the prayers! I haven't heard anything today about her progress so I'm hoping no news is good news.



sometimes NO news can be Good news, they are still in my thoughts and prayers

[Cpogie]

I got an email from carepages, there was an update on the baby, this is what was posted about Addison today. Prayers being sent!!


18 April 11, 2008 at 05:49 PM EDT
Good news and bad news today. Bad first... The doctors do believe that Addison has developed the NEC symptoms that I mentioned yesterday. Good news... they don't believe that she has it to the extent of dying intestinal tissue. They think that they caught it in time and are working on fixing the problem. They have put her back on TPN and lipids and taken all foods away from her. They say that this is part of the treatment for NEC along with antibiotics. More of the just Wait and See days ahead. They say that if the NEC has not gotten worse in 24-48 hours from onset, then you have probably gotten off with a mild case... lets hope for that. We are over the 24 hour mark... working on the 48 hours.
Love to all. Thanks for the continued prayers. Please continue to pray for Addison to get over this bump in the road and have lots more good days. Also please continue to pray for her doctors and nurses that they might be the instruments of God to protect and heal our precious baby.

Ronnie, Emily, Harley, Bailey, and Addison

[bunny]

I will gladly pray, I really hope that everything works out for them and they all live happy and healthy lives.

[momsangel]

Prayers still being sent

[MandMnmbr3]

I just saw this thread Deanna. Prayer will be offered for Addison, her parents and caregivers.

Hugs,
Mae

[SSIAnkie]

Prayers for baby Addison and family.

[GeorgiaMom]

Thanks for posting the update for me Carol. I really appreciate all the prayers. Hopefully God will work another miracle and Addison will get through all of this.

[Cpogie]

Thanks for posting the update for me Carol. I really appreciate all the prayers. Hopefully God will work another miracle and Addison will get through all of this.

Whats really nice about that web site is that they notify you when there is an update. Addison is a fighter for sure, prayers abound!

[bvanpeltsw]

I sent NICU information to the family along with my card. Please let them know they can contact me if they would like more info. That is what the March of Dimes is for.;)

[Mrs. Danger]

Prayers are a great thing. I sent one for her as soon as I opened this thread.

[GeorgiaMom]

This is the latest update on Addison...

Hey all, another day closer to my baby being well. That is how I have chosen to look at it for now. Things may change, but that is my take on things.
Today, the doctor said that Addison may have to have surgery on her intestines. He says that he sees something on the x-ray that indicates that she has some damaged intestine. If they have to operate, they will cut out the damaged section and give her an ostomy bag. This is where her feces will come out her abdomen into a bag instead of through her hiney. After the ends of the intestine have time to heal, they will then go back in and reattach the intestine and take out the ostomy.
Sometimes it seems that everytime I think she is doing good and say so on this site, things change. I am trying to keep up, so bear with me.
Otherwise, Addison is doing well. There are no bleeds indicated on the sonogram of her head. She is still intubated, but breathing mainly on her own... the ventilator is on a demand setting where it only kicks in as needed and she ain't needing it too much(according to the nurse).
Again, thanks for all the support throughout this time.


Ronnie, Emily, Harley, Bailey, and Addison.

[momsangel]

Prayers still being sent to them!

[Cpogie]

I just received the latest update on baby Addison.

April 21, 2008 at 05:24 PM EDT
Went to see little Addison today. The Umbilibcal artery line is OUT as well as one of her IV lines. Her Belly is still swollen. We are hoping that they will do the tests on it in the next couple of days and let her start eating again. Right now... only IV fluids for nourishment.
She is still having a few of the apenic episodes, but they say that she will grow out of them in the next 3-4 weeks. Lets hope they are right. Right now she is still on the vapotherm machine which is a nasal cannula oxygen device at higher pressure. They hope to get her on the regular nasal cannula soon and off of the high pressure.
Every thing else seems to be going fine. Still gaining a little weight (up to 2 pounds 10.5 ounces) and still not on any antibiotics.
Love to all
Ronnie, Emily, Harley, Bailey, and Addison.

[momsangel]

Thanks for the update Carol, she seems to be improving which is a good sign:)

[mom2fussbudgets]

Poor thing! More prayers sent!

[wbarker]

I'm adding my prayers to the rest! Prayers going out to little Addison, her family and friends, and her helpers!

Thanks for the updates!

[bvanpeltsw]

She is growing quite well. I am very happy for her family.:)

[Chelle]

It is so hard to see little ones like that....I am surely praying for the family...The baby is really precious

[caryn]

I too will pray for this family and check on this site often for updates!

[Cpogie]

Update on baby Addison...May 1

May 01, 2008 at 04:10 PM EDT
WOW, what a difference a day makes. First of all the good news... 3pounds 1 ounce. Still working towards the bigtime.
Now the bad news. Addison had to be intubated again. They had to put the tube back in her throat that helps her breathe. She started having the periods of apnea again today... only worse. She would stop breathing and her heart rate would drop, when vigorously stimulated, she would start breathing and her heart rate would come back up, but would not stay. When you stop stimulating her, she would quit breathing again and her heart rate would drop. They do not know exactly what is causing it. They just keep saying "she is a premie and premies do this." Another of their wait and see situations.
They keep telling us that the situation with a premie is like a roller coaster, it has its ups and downs...well i, for one, am tired of this roller coaster. I am ready for it to be over with and my baby to be better.
Please continue the prayers for Addison and the rest of us as well.
Love to all
Ronnie, Emily, Harley, Bailey, and Addison

[notyard]

Prayers for the little one and all affected...

[mood4amelody]

I'm still praying for this little sweetie. God speed to good health for her and comfort and peace of mind for her family. Addison does have one great advantage - Jesus truly does love the little children. :o

[MandMnmbr3]

I too, am still praying for her. I know that miracles DO happen!! :D

Thanks for keeping us updated Carol.

Hugs

[Cpogie]

Baby Addison needs more prayers today, she has pneumonia right now and is in isolation.

May 02, 2008 at 10:39 AM EDT
Well, they told us that this was a roller coaster ride... it just seems like right now the only way we can go is down. Addison has been diagnosed with pneumonia in her right lung and she has an antibiotic resistant infection that has gotten into her blood stream. They have moved her from the NICU floor to an isolation room and we will now have to glove and gown to see her. They have started her on some high power,high dollar antibiotic that MIGHT help with the infection. Just have to (again) wait and see.
Love to all,

Ronnie, Emily, Harley, Bailey and Addison

[GeorgiaMom]

Thank you so much, Carol, for updating this for me. Things are pretty rough on Addison and her family right now, and I am so greatful to see you ladies are still checking on her and keeping her in your prayers. She may still need surgery on her intestines as well, so Addison could be in for some really hard times even after she kicks the pneumonia.

Hugs and love to you all!

[Cpogie]

Prayers are working!!!!!!!!!

May 03, 2008 at 12:48 PM EDT
Hi everyone. Addison's pneumonia is much better, yesterday the entire right lobe was affective,today only the upper lobe. Still no results on the blood cultures. She continues to be on the antibiotics, she acts like she feels much better today. We will keep everyone posted on her progress.

[MandMnmbr3]

Thanks Carol!!! I'm sure the prayers that are being offered all over the US and probably the world for this precious little one ARE being heard.

I truly believe in the power of prayer. If not for it, we would not have been blessed with Cashton and his perfect health today!!

Hugs,
Mae

[VanillaBean]

I am praying so much that eevrything turns out ok...hard for me to be happy one minute for my upcoming nuptials and then be so saddened for Baby Addison....my thoughts are going out for Addison!!!!

[Cpogie]

Baby Addison needs a few extra prayers today, she is not feeling well..

May 04, 2008 at 04:29 PM EDT
hey all. Addison having another bad day today. Her abdomen is REALLY swollen. It has increased by 2.5cm since Friday. They are keeping an eye on it and are "concerned", but do not see anything right now to indicate even an exploratory surgery. They continue to monitor it.
Today, she looks like she feels bad. Just has that look about her... I do not know how to explain it.
We will try to keep everyone updated as much as possible.
Love to all

[MandMnmbr3]

Carol, thanks again for the update. I lifted Baby Addison and her family up at Church today.

Hugs,
Mae

[bunny]

poor baby. I'm all over the praying thing . I feel awful that the little thing is going through this .

[GeorgiaMom]

I saw Addison's parents at church today. They are trying to be upbeat, but it's really easy to see how hard things are for them right now. Thank you all for your continued prayers. It really means a lot.

[LadyPyro]

Poor sweet little angel! I continue to pray for her, her parents (and all who love her), as well as for her caregivers. A caregiver myself (not for Addison, but for other ill folk), I can tell you that this is almost as hard on her caregivers as it is on her parents. So, if you all have a moment, please hold them up in your prayers as well.
Hugs!

[GeorgiaMom]

Today's update....

Hello, Addison's belly was 30cm this morning, biggest it has been yet. She is going in for an exploritory laprascopic surgery today. The doctor thinks she may have a hidden periforation of her bowel that they cannot see on the xray. We are nervious and happy at the same time. We hope that the surgery will be a success and her belly will get better. Please keep us in your thoughts and prayers. Sorry for all the missed spelled words. Emily



I don't know what time the surgery is. It may have been done already, but I haven't heard anything from them yet. Please keep praying. She really needs us all today.

[GeorgiaMom]

Surgery update....

Surgery was a success!!!! Addison came through her surgery with no complications and is doing fine now. She is a little pale, but that is due to the loss of blood during the surgery. They plan to give her a transfusion later this evening and that will help with the paleness.
They had to take out a total of 13.5cm of intestine. 13 of it in one clump of dead and decaying bowel. This also had some feces in the area from the perferation of the bowel. The other 0.5cm of bowel was from another small spot that he took out as a precaution. He said that this was probably the cause of the blood infection this past weekend and was the cause of all of the swelling. She has a flat tummy now.
She does have an ostomy. This is where the bowel is rerouted to
the outside of the abdomen and the feces will drain into the ostomy. The surgeon said that in 4-6 weeks, he will go back in and reconnect the intestine and remove the ostomy and she should have a normal system from now on. They plan to start feeding her next week.
We still have a long way to go before our baby is home with us, but this feels like a HUGE step forward in the process.
Again, Many thanks to everyone for the continued prayers and thoughts. There is no way that we could have made it this far without your prayers and the love of a mighty God to lead us. We ask for you to keep us in your prayers as we keep you in ours.

Love to all

Ronnie, Emily, Harley, Bailey, and Addison

[VanillaBean]

Oh my poor little thing.....Many prayers for her!!!!!!! glad they found out what was wrong and could fix it!!

Thanks for the update

[Cpogie]

I'm so happy the surgery went well today.
Prayers for this little girl until the day she is safely home with her family.

[MandMnmbr3]

Thanks for the update on Addison!! Wonderful news that her surgery went so well. Still keeping her, her family , and caregivers in my prayers.

Hugs,
Mae

[Cpogie]

Great news today!!

May 14, 2008 at 02:53 PM EDT
Today, Addison looks the best that she has ever looked. She is finally getting the breast milk that she needs. They started her last night on a special formula for babies with history of stomach/intestinal problems. The plan was to keep her on it until she tolerated the formula well enough to go over to the breast milk. At noon today, they swapped her over to all breast milk.
She is still on the vapotherm oxygen system that is pressurized to keep her lungs inflated, but it is at the lowest setting and at the same amount of oxygen as in normal air... no additional oxygen.
She still has the ostomy in her tummy, but is doing well and the surgery site looks good. They have said that if she does well, she could go home even with the ostomy. We will just have to learn to clean it until they decide to return her intestines to normal... I think me and Emily should be able to handle that though.
They next step is to move her to a regular crib. They seem to think that this will happen in the next week to 10 days. After that... Home sweet Home.
Thanks to everyone for the prayers and support.

Ronnie, Emily, Harley, Bailey, and Addison

[momsangel]

Thanks for the updates,carol

sure glad things seem to be looking up for them!

[Jess0587]

Glad to hear she is getting better!!! I will continue to keep them in my prayers!

[utkd29]

Things look to be turning around for her! Good to hear the good news:)

[bunny]

OH what wonderful news !!!! we will keep up with all the prayers.

[mom2fussbudgets]

Yup! Good news! :D

[GeorgiaMom]

Things are really starting to look great for Addison! It's amazing to me how strong such a tiny little baby can be.


Today, Addison made the big move. She is out of the isolet bed and into a regular crib. They have her wrapped with blankets to keep warm and she is doing well at maintaining her temperature.
She is on Breast milk and responding well. She is not absorbing the nutrients as well as they would like so she still has the IV nutrients to suppliment her milk. Hopefully, when they reattach her intestines, she will absorb properly and not have any problems. They are still saying that the reattachment surgery will be in 3-5 weeks from this week.
Love to all

Ronnie, Emily, Harley, Bailey, and Addison

[MandMnmbr3]

Thank you for keeping us updated. I've kept the family and all involved with her care in my prayers.

Hugs,
Mae

[Cpogie]

Yeah! Prayers are surely working, she is getting stronger everyday!! :D

May 22, 2008 at 09:53 PM EDT
Again, Addison continues to do well. They have moved her out of her private room and onto the main floor of the NICU.
We talked to the surgeon today. He indicated that we are looking at about 6 more weeks in the hospital. Three more before they repair her bowels, and the about three more to get her feedings up so that she can go home.
Still no supplimental oxygen. Still doing well. Please continue to pray that we stay on the uphill course that we are on now.

[momsangel]

Good news again, this is wonderful:) Thanks for keeping us updated,carol

[MandMnmbr3]

Such good news for this precious little one, so uplifting!!

Hugs,
Mae

[Cpogie]

May 29, 2008 at 08:48 PM EDT
Addie continues to improve from her recent illness. She is still having a few of the episodes of slow heart rate and apnea. Still not sure what is causing this.
The surgeons came by today and said that either tonight or tomorrow, they are going to run a test to see how her lower intestines are doing and to see how near that the intestine is to being ready to repair the hole they cut. Will try to update as soon as we find something out.
Love to all

Ronnie, Emily, Harley, Bailey, and Addison

[utkd29]

Thanks for the update Carol. Still sending prayers for her and the family.

[momsangel]

thanks for updating this for us Carol

my thoughts and prayers are with them

[Cpogie]

This is the last posted update for Addison, gee you sure can read the stress mom is going through, hopefully little Addison will be able to come home soon.

June 07, 2008 at 09:12 AM EDT
Hi everyone! Addison is finally five pounds! She is doing very well. There is still contrast in her belly from the last fistula gram and they cannot repeat the test until it has cleared, which has set us back about two weeks.
Yesterday I was in tears, someone had put a three month size outfit on her, it was way to big. What upset me was that she is almost three months old and is still in the hospital. I want her home so bad, I called the nursery to get report on her and the nurse called her self Addisons "mommie for the night".
I just want her home. Thanks again for all the prayers! We love you all. The Adams Family.

[Ginger123]

God bless baby addison and her family during this time. Praying that she will be going home to her family soon.

[Cpogie]

Much better news today.

June 13, 2008 at 04:32 PM EDT
Hi everyone! Good news! Addisons surgery to reconnect her bowel has been scheduled for the 25 of June. The surgon has a few theorys on the contrast still in her bowel, he thinks that it has coated her bowel and is not a solid mass, because she is passing breastmilk through her ostomy. He feels that he can irrigate her bowel shortly before the surgery and remove the contrast if need be. Please keep us in your thoughts and prayers. Emily,ronnie,Harley,Bailey and Addison.

[Cpogie]

June 19, 2008 at 07:49 AM EDT
Hey all, Addie continues to do well. She had the Barium test yesterday and they FINALLY got it right. They actually put the barium in the correct fistula this time. They said that all looks good and she is a go for the surgery next Wednesday. They have also begun to irrigate the lower part of her intestines in preparation for the surgery.
She had an eye test Monday and they diagnosed her with Retinopathy of Prematurity(ROP). They say that she has stage 2 (1 being the mildest stage and 5 being BLIND). Usually, Stage 2 will correct itself within a few days. They are going to retest her weekly for the next few weeks and monitor the ROP. If it gets worse, they can try a laser surgery to correct it. We hope and pray that it gets better and she does not have any eye problems in the future.
Thanks to everyone for the prayers and concerns. Love to all.

Ronnie, Emily, Harley, Bailey, and Addison

[utkd29]

Thanks for the update Carol. Glad to see things are going better for baby Addison.:)

[momsangel]

Thanks for the update

Prayers still being offered to them all at the trying time

[ALawicki]

Thanks for the update, keep up with the prayers cause they are working! Hopefully the poor thing doesn't feel much pain.

[Ginger123]

Still praying for that sweet little baby!:)

[NancyBJ]

Prayers coming their way for both Addy and the whole family!

Love to all,
Nancy

[Cpogie]

Addison needs more prayers this week to get her through her surgery on Wed.

June 23, 2008 at 08:14 PM EDT
Addison continues to do well. She is getting prepared for her surgery on her stomach on Wednesday. They still say that she is looking good for the surgery and do not expect any major problems.
As far as her eyes go, they have said that if Addison were going home in the next few days, that they would go ahead and do the laser surgery to correct the ROP. Since we are going to be there a few more weeks, they feel like they can hold off and just watch it a little longer.
Please continue to pray for her in the coming weeks. She has a big challenge ahead with the stomach recovery and hopefully her eyes can clear up and not need surgery.

Love to all

Ronnie, Emily, Harley, Bailey, and Addison

[bunny]

A whole new set of prayers are on there way. Give them all a great big hug and a kiss.

[SSIAnkie]

Prayers are being said for this sweet baby girl and her family!

[ALawicki]

Glad to hear that things are doing better. Hope the surgery goes well and hopefully no surgery on the eyes. Prayers are still with you!:)

[mspete]

Prayers are on the way. I don't know of anything that is more painful than a child in distress. Remember, you have lots of friends here and every one is praying for Addison.

[2550]

Poor little angel...She is remembered in my prayers.

[Cpogie]

June 25, 2008 at 04:35 PM EDT
Addie has come through her surgery successfully. They have reattached her bowels without any complications. They are giving us between 2 and 4 weeks bofore she comes home. It is according to how her bowel does with accepting feedings and if the bowels can absorb the nutrients from her food when they do start the feedings. Please continue to pray for her.

Love to all

Ronnie, Emily, Harley, Bailey, and Addison

[utkd29]

That's wonderful news! Hope she gets home real soon!:)

[MandMnmbr3]

Thanks Carol for the continued updates on this little one. God IS good!

Hugs,
Mae

[Cpogie]

June 28, 2008 at 08:02 AM EDT
Addie continues to improve from her surgery. They have taken the breathng tube out of her and are working on getting her off of all oxygen and pain meds. They have to slowly work off of the meds because they do not want her in any pain but need to wean her off the meds. They hope to have her off of the meds by today. They are also working her off of the oxygen. This too is a slow but steady decrease until she can tolerate being without the supplimental oxygen.
Thanks to everyone for your prayers and support this week and throughout this entire situation.

Ronnie, Emily, Harley, Bailey, and Addison

[Jess0587]

That's some very good news! Glad to hear she is continuing to make progress and getting better! Thanks for the update, Carol. I will keep praying for them!

[LadyPyro]

June 28, 2008 at 08:02 AM EDT
Addie continues to improve from her surgery. They have taken the breathng tube out of her and are working on getting her off of all oxygen and pain meds. They have to slowly work off of the meds because they do not want her in any pain but need to wean her off the meds. They hope to have her off of the meds by today. They are also working her off of the oxygen. This too is a slow but steady decrease until she can tolerate being without the supplimental oxygen.
Thanks to everyone for your prayers and support this week and throughout this entire situation.

Ronnie, Emily, Harley, Bailey, and Addison
Truly good news! Prayers & positive thoughts continue for Addie & family & caregivers!

[momsangel]

Very good news indeed:) Positive thoughts still being sent their way!

[Cpogie]

Good news!!!!

June 30, 2008 at 04:48 PM EDT
Addison is off the oxygen and the pain meds. This is the first time we have seen her without a tube taped to her face.I was very excited to change my first poopie diaper today! That means the plumbing is working. They are holding off the feedings for now. I hope tomorrow they will feed her, she is so hungery!! They give her sucrose to help with the aggitation, it really just makes her want to eat. She is so beautiful, I can see the light at the end of the tunnel, she is coming home soon!

[Jess0587]

Good news!!!!

June 30, 2008 at 04:48 PM EDT
Addison is off the oxygen and the pain meds. This is the first time we have seen her without a tube taped to her face.I was very excited to change my first poopie diaper today! That means the plumbing is working. They are holding off the feedings for now. I hope tomorrow they will feed her, she is so hungery!! They give her sucrose to help with the aggitation, it really just makes her want to eat. She is so beautiful, I can see the light at the end of the tunnel, she is coming home soon!

This is just WONDERFUL!!!! I am so very happy for them!!! Keep the good news coming!!! :D Still praying!

[utkd29]

Thanks for the update Carol. That is such great news. Hopefully baby Addison can come home soon!:)

[mspete]

wonderful news! Prayers work!!!!!:) :)

[MandMnmbr3]

Wonderful news!!

Hugs,
Mae

[Cpogie]

Things are really starting to look great for Addison.

July 01, 2008 at 04:54 PM EDT
Today has been a BIG day for us. Addison had her first real feeding with real breast milk since her surgery. She seems to be tolerating it well and likes it. She gets 10ml every three hours. Her target is to get 45ml every three hours. Then we can bring her home. Her doctor told us today that there is a possibility that we have a chance of maybe, possibly, hopefully bringing her home the first of next week!!!!!! He said that it is only a guess and not a guarantee. We are trying not to get our hopes too high but it is hard. We can FINALLY see the light at the end of the tunnel. Please pray that she continues to take her milk well and that her stomach and intestines continue to absorb the nutrients and not have any problems.
Our only other concern for now is her eyes. They have not rechecked them since last week so we do not know if they have gotten any better or worse since then. Pray for improvement!!!!

Love to all

Ronnie, Emily, Harley, Bailey, and Addison

[MandMnmbr3]

Thanks be to God!!! This is definitely wonderful news!! Carol thanks so much for keeping up updated on this precious little ones condition!

Hugs,
Mae

[2550]

How wonderful! Blessings to you all. I know that she's going to be fine. She sounds like a real fighter!

[LadyPyro]

WOO!! Thank You God!! and the prayers will go on!

[CHAR_60]

We will pray for Baby Addison. Our Granddaughter was born at 26 weeks. She weighed 2lbs.1oz. and was 12" long. She is a happy 5 year old now. She has some health issues but does not let anything stop her.

[momsangel]

We will pray for Baby Addison. Our Granddaughter was born at 26 weeks. She weighed 2lbs.1oz. and was 12" long. She is a happy 5 year old now. She has some health issues but does not let anything stop her.


Thats great news! I am happy for you and your family

[Cpogie]

July 14, 2008 at 10:16 PM EDT
Today has been a pretty good day. We had to learn how to maintain Addison's nasogastric tube for her feedings. Tomorrow we have to learn to use the pump that will assist with feedings. All things we will go home with. IT IS COMING!!!!! We do not know exactly when, but we are learning all of the things that we need to know in order to come home!!!
This means that she will come home with a apnea monitor and a feeding tube, but we will continue to monitor her and maintain her therapy on an outpatient basis. All things that Emily and I will have to do... but who better than a paramedic and a nurse to take care of our little baby. We can handle any thing with the help of Christ, family and prayers.
Love to all


Ronnie, Emily, Harley, Bailey, and Addison

[Motherofthree]

July 14, 2008 at 10:16 PM EDT
Today has been a pretty good day. We had to learn how to maintain Addison's nasogastric tube for her feedings. Tomorrow we have to learn to use the pump that will assist with feedings. All things we will go home with. IT IS COMING!!!!! We do not know exactly when, but we are learning all of the things that we need to know in order to come home!!!
This means that she will come home with a apnea monitor and a feeding tube, but we will continue to monitor her and maintain her therapy on an outpatient basis. All things that Emily and I will have to do... but who better than a paramedic and a nurse to take care of our little baby. We can handle any thing with the help of Christ, family and prayers.
Love to all


Ronnie, Emily, Harley, Bailey, and Addison

Thanks Carol for the update!! It sounds like baby Addison will be coming home soon!!! Awesome!!:)

[MandMnmbr3]

Thanks once again for the update Carol!! Looks like little Addison is on her way to be released from the hospital. I'm so happy for her family!!! :D

Hugs,
Mae

[Jess0587]

Keep the good news coming Carol!! This is fantastic! I'm so happy for baby Addison and the family. :)

[bunny]

amazing !!! keep up the great work and I will keep on praying.

[utkd29]

Thank God prayers work. So glad she is progressing so fast!:)

[Cpogie]

July 19, 2008 at 11:31 AM EDT
Addison has started dumping her feeds again.That means that she is not absorbing the nutrients from her feeds again. They plan on testing her for the dumping every day and adjusting her feeding times every day. On the days that she is not dumping, they will drop her feeding time by 15 minutes. As of today, her feeds are over a 2 hour time period. When they get down to one hour, they are going to let us go home. That could be as little as 3-4 days or it could be a lot longer. Just according to her tummy.

Thanks to everyone for all of the prayers and support.

Ronnie, Emily, Harley, Bailey, and Addison.

[bacceber]

Wow,Cpogie thanks for the updates,I too will pray for Addison and her family.I know how they feel because 33yrs ago my nephew came into this world weighing 1 pound 12 ozs.These children face a steep uphill battle,many surgeries,but medical technology has come a long way.And these children are fighters,so my prayers are with her and thanks for being you.

[LadyPyro]

Thanks for the updates! I'll keep lifting them in prayer...

[moonchild64]

Wow! Sounds like this precious little Addison has been through a lot already. I am so glad she will get to come home soon. :)

One of my sisters was premature. This was way back in the day before they had all the knowledge and equipment they do now. They were trying to get her up to 5 lbs. before they would let her go home. She was losing weight instead. Finally, my mother insisted she take her home. Glory be! After Mom got her home ... complete change in my sister. She ate fine and put on enough weight that before long you couldn't even tell she was a preemie.

I hope and pray Addison does just as well!

[NancyBJ]

Thanks for all the updates Carol- sounds like Addy is doing great :) ...just minor setback (her tummy needs to settle in ;)) ...let us know when they go home. That will be a WONDERFUL day for them all! :D

Positive thoughts and prayers still always coming their way!

Warmly,
Nancy :)

[Cpogie]

July 22, 2008 at 01:26 PM EDT
Addison is doing well. They have said that she is no longer dumping her feeds and have decreased her feed time to 1.5 hours. 1 hour is the magic time for us. When she gets to 1 hour and no dumping, we can go home!!! We are very anxious to get home and be with our family outside of this hospital setting. We well know that there will still be trials and many doctor's appointments, but we are ready for the next phase of this journey. Please keep up the prayers.

Love to all
Ronnie, Emily, Harley, Bailey, and Addison

[Jess0587]

Great news!!! I pray they all get to be home together very soon! I know they have got to be sick of that hospital... seeing it that is! I will continue to keep them in my prayers. Thanks Carol, for the update!

[Cpogie]

July 23, 2008 at 07:56 PM EDT
More of the roller coaster ride this week. Addison had been doing so well and then, she starts dumping again. This sets us back a few days at best. Every time she dumps, it sets us back by 2-3 days. Please pray for her intestines to start absorbing the nutrients again and not to dump any more.
She also has an abcess on her stomach at the incision site. They are treating it with antibiotics and looks much better today than yesterday when they started the medicine.

Love to all

Ronnie, Emily, Harley, Bailey, and Addison.

[momsangel]

Prayers still being sent their way

[Cpogie]

July 27, 2008 at 10:34 PM EDT
Finally, feedings are below 1 hour time. Today the doctor reduced her time to 45 minutes!!!! If all goes well, we are really looking at this Wednesday for coming home. Possibly sooner!!!!!
They could find no signs of infection except the small red area around her surgery site. Everything looks good. She does have a herniated area at the surgery site too. This is fairly common with abdominal surgery and can be repaired at a later date. They have talked about maybe looking at it next year.

Please continue to pray for her as we get ready to bring her home and that she will do well with her feedings from here out.

Ronnie, Emily, Harley, Bailey, and Addison

[bunny]

July 27, 2008 at 10:34 PM EDT
Finally, feedings are below 1 hour time. Today the doctor reduced her time to 45 minutes!!!! If all goes well, we are really looking at this Wednesday for coming home. Possibly sooner!!!!!
They could find no signs of infection except the small red area around her surgery site. Everything looks good. She does have a herniated area at the surgery site too. This is fairly common with abdominal surgery and can be repaired at a later date. They have talked about maybe looking at it next year.

Please continue to pray for her as we get ready to bring her home and that she will do well with her feedings from here out.

Ronnie, Emily, Harley, Bailey, and Addison

This is wonderful news . I'm so happy for all of you and will continue to send prayers your way. Congratulations!!!!!!!!!

[NancyBJ]

Wonderful news! :) Continous prayers and positive thoughts still coming their way!

[GeorgiaMom]

Thanks again Carol for keeping this updated. I really appreciate it, and it seems like everyone's prayers are working. I'm so excited that I'm actually going to get to see Addison in person soon! I figure I'll let them enjoy her at home for a couple weeks, but after that I'll be going over to see them!

[Motherofthree]

FINALLY SHE IS COMING HOME!!!!
July 29, 2008 at 04:06 PM EDT
Tomorrow is the day. Addison is FINALLY coming home. They are going to put her on a higher calorie formula tonight and see if she absorbs the formula. They are then going to take out her central IV line in the morning. As long as there is no dumping, and she absorbs the formula correctly.... (to paraphrase MLK) Free at last, Free at last, Great GOD almighty were gonna be free at last!!!!!!!!

Continue to pray for us in the weeks and months to come
Ronnie, Emily, Harley, Bailey, and Addison

[Cpogie]

Yes, finally!!! I was just going to post the good news. I hope all goes well for them. God has answered ours and their prayers. Yeah! Life is good.

[NancyBJ]

WOO-HOO! :D Big day tommorrow!! Congrats! Life is wonderful! :D

[GeorgiaMom]

HOME AT LAST. We actually got home yesterday afternoon about 5:30. All is going well. We have to maintain her Central line IV and feeding tube. I will get some pictures up in the next day or two.
Love to all. Thanks for the continued prayers.
Ronnie, Emily, Harley, Bailey, and Addison




Thanks again for all the prayers everyone! I can't wait to go see her!!!

[Cpogie]

This is the best news!!! This made my DAY!!! thanks for letting us know. I bet mom and dad are so happy she is home!!

[Motherofthree]

HOME AT LAST. We actually got home yesterday afternoon about 5:30. All is going well. We have to maintain her Central line IV and feeding tube. I will get some pictures up in the next day or two.
Love to all. Thanks for the continued prayers.
Ronnie, Emily, Harley, Bailey, and Addison




Thanks again for all the prayers everyone! I can't wait to go see her!!!

Hey Shelley,

I am curious to know if the Addison family knows that they have their own thread at start sampling and also if they know how many people have been praying for their precious baby girl? lol:)

[bvanpeltsw]

Hey Shelley,

I am curious to know if the Addison family knows that they have their own thread at start sampling and also if they know how many people have been praying for their precious baby girl? lol:)

I am pretty sure they do. I sent them a care package from the March of Dimes and included a little note.

[Motherofthree]

I am pretty sure they do. I sent them a care package from the March of Dimes and included a little note.

Oh, that was nice of you!

[GeorgiaMom]

They know there are people all over the country praying for them and their little girl. They even said something at church one day about getting mail from New Mexico (thanks Brandy!...you are very appreciated)

[momsangel]

So grateful and excited she is home:) Prayers still offered to them daily,it will be a journey for them!

[Cpogie]

Update on Addison..........

This has been an interesting week with the little one. She took her first trip to church on sunday and did well. We had to leave early as it was running in to her feeding time. Feeding is every three hours and takes an hour at a time. That is really rough around 3 in the morning!!! Really tough for Emily when I have to work all night. Yesterday was the first day that I went back to work and Emily had her all by herself. On Monday, we took her to her pediatrician and she had lost 2 ounces. We had to take her back today to recheck her weight and now she had gained one of the ounces back. Had she continued to lose weight, they were talking of admitting her back in the hospital to see what is going on. Continue to pray for us as we still have a long way to go. Ronnie, Emily, Harley, Bailey, and Addison

[utkd29]

Still praying for baby Addison, I hope she gains the weight. Praying for mom and dad too, that have to be worn out!

[MandMnmbr3]

Poor baby, she sure has been through a lot for her young age. Still praying for her.

Hugs,
Mae

[Motherofthree]

Not trying to lighten the situation or anything but babies usually loose weight when they first come home.. But under the circumstances I would understand the concern..

Still praying that she will continue to thrive!!:)

[SSIAnkie]

Praying that baby Addison gains weight! Hope she is doing better soon! :)

[Cpogie]

Central line
Posted 24 minutes ago
The surgeon is going to remove Addison's central IV line tomorrow(8-27) at about 8 am. He has said that he can do it in his office and not have to completely knock her out. If he can do it this way, she will not have to spend the night in the hospital. If he runs into complications, he will have to take her to surgery and put her out for the procedure. Keep fingers crossed and prayers lifted.

Thanks

Ronnie, Emily, Harley, Bailey, and Addison

[utkd29]

Glad things are getting better for baby Addison. I will be praying everything goes smoothly tomorrow.

[Cpogie]

Addison
Posted 2 hours ago
Addison continues to do well. She is up to 8 pounds. She has begun to show a personallity... smiling, laughing, such as that. She has been evaluated by both speech and physical therapists and they think that she needs some therapy... not much... but some.
Bailey continues to get used to the idea of not being an only child. She shows her jealousy sometimes when she wants us to do something, but we have to take care of Addie first. She is learning though, after we get Addie set, we are her willing playmates.
Harley is the star of her school's fall play. She has the lead role and seems to be doing great at it. The play is the 19 and 20 of this month and she says that they are ready for opening night.
Emily and I are still kicking. We are enjoying our family, just wish Addison would take a bottle and get rid of the feeding tube.

Thanks to everyone for the continued prayers and support.

Ronnie, Emily, Harley, Bailey, and Addison

[Motherofthree]

Great news!! I'm so happy for them and I'm sure they are so happy to have their baby home!

[Cpogie]

in hospital
Posted 41 minutes ago
We had to bring Addison to the hospital this morning around 5 because her apnea monitor kept going off. We did not see any signs of her being apenic, but that is what the monitor kept saying. They are admitting her for observation and keeping us overnight. I will try to update and let everyone know the outcome of the stay in the hospital.

Ronnie, Emily, Harley, Bailey, and Addison.

[momsangel]

Oh DEar, I hope everything goes well for them all

[utkd29]

Praying for the best outcome for Addison.

[2550]

Prayers for that sweet angel...